Just responding about my case: diagnosis and surgery results.
I was diagnosed with LMS last January as a result of a Mayo analysis of the 7 biopses. The mass was 3"X2.5"X3" and found in the pelvis. The first action ended up being a series(25) of radiation applied. After a 5 week treatment (2 antibiotics for a blood infection), and a urology procedure of inserting 2 stents in the ureters, I had surgery on June 25. The result was not what any of us wanted: leftover pieces of the sarcoma. The problem was that the sarcoma inveloped the femoral nerve and a muscle (psoas). The nerve was not recoverable, and left me with a numb leg from the hip to the top of my ankle. Pt has been very good and encouraging. I walk with a walker now and working towards a cane. Cemo was offered, but at 77 and the descriptions of some of the affects of it, I decided not to participate.