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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
Thanks John, Very sorry I miss quoted my Doc and she did not say " because it's time" that was all my Thought. All of my test continue to be in the normal range (CRP and sed rate among others). The results of my recent MRI was not good. My pain is mainly in one arm ususally after i slept on it. I continue to work with a PT to increase my flexibility. I have slowly tapered over the last 20 months as directed by my rheumatologist and now on 1mg every other day and will go off Prednisone soon. I had a relaspe last year and had to go back to 5mg and I realize may have to go back on prednisone at some time in the future.
I very much appreciate all you do.
Alan
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Thanks Alan @alanbruce. I'm happy it's not the PMR. I have had similar experiences because I sleep on my side. Normally it will be my left arm and I will wake up with it feeling completely numb. So I just shake it off for a few minutes and roll over to the other side. My MRI was also not good as I have osteopenia. The doctor put me on 1200 mg of calcium daily but it plugs me up pretty bad so I went off for awhile and now found some calcium chews that don't seem to have the same effect as the tablets. I try to eat more calcium rich food and drink more milk but it's a struggle for me. I also had a bone scan which is when the doc put me on a calcium supplement.
Hoping you can finally get off of the prednisone. Don't be discouraged. We are all different. It took me a little over 3 years to taper off the first time PMR showed up. I was going between 1/2 mg and 1 mg for the last 6 months before I was able to stop taking it with just a little discomfort for pain.
John