Connect
← Return to PMR and Flu Vaccine
Discussion
Comment receiving replies
I am relatively new to PMR. I think my symptoms started in Dec. 2024 but I wasn't diagnosed until Feb/March 2025. I have been on prednisone since and am now down to 5mg a day. I see my rheumatologist next month. Until recently I did not realize the link between vaccines and PMR. I had a flu vaccine about 6 weeks before onset of PMR symptoms and COVID about a week before. Many of you in this group are more experienced with PMR. What questions do you think I should ask my rheumatologist on my next visit? I hate to skip the vaccines because I have had lung cancer and I was recently diagnosed with t-cell large granular lymphocytic leukemia (T-cell LGLL) which puts me at greater risk for infections-I think. Apparently this rare slow moving leukemia is associated with rheumatic arthritic conditions. I am just learning about this disorder. Anyone have insight about it?
Replies to "I am relatively new to PMR. I think my symptoms started in Dec. 2024 but I..."
Connect
There is no doubt that the Shringrix vaccine triggered my PMR. My adverse reaction started the day of my vaccination. I have had non-standard PMR symptoms and am working not only with a Rheumy but also an Infectious Disease doctor, a Cariologist and a Pulmonologist all a result of my 2nd Shringrix vaccination. I have worked with my Infectious Disease doctor on getting vaccinations. I got the RSV, Flu and Covid last Fall. I got each one 2 weeks apart. This year I will be getting the Flu and Covid 3 weeks apart. This Spring it was time for a tetanus booster. I got that and planned a one-week slow period to not push my body. I would much prefer to get the vaccinations than to have the problems, especially tetanus! Everyone' s journey is different and there is little medically known about PMR itself. Remember it is a default diagnosis, there is no test they have to run to confirm PMR. Advice is good, but don' t be afraid to ask questions and in the end you will need to make your own decisions since there is not a single standard of care for PMR patients. I wish you well on your PMR journey. I was sorry to hear of your lymphocytic leukemia. Even slow moving it is disturbing.