Yes! Thank you so much for this question. I am 56 - have always been active (aerobics, running, etc.), I'm a realtor, notary and up until 2 weeks ago had a very successful karaoke show I had to stop because of these issues. I have chronic pancreatitis, EPI (exocrine pancreatic insufficiency), severe protein calorie malnutrition, IBS, diverticulosis and GP! I believe my pancreas was having issues (in 2014) and my gallbladder was removed because they thought my symptoms were GB related. However, after GB surgery, I woke up in horrific pain in my pancreas. It was freaking out literally. I have since has several bouts of pancreatitis and know now that was the pain I was experiencing after surgery.

Since that time I have slowly lost the desire to eat anything. When I can eat I can only eat a few bites. It absolutely has come on gradually until now I can barely get anything in and stay nauseated until around 2PM each day, if I've eaten solids the day before. Now I am belching all the time and it seems like liquids want to come back up on me. All this and after years of going to my GI doctor he is JUST NOW having the stomach emptying study (scheduled for the 5th) but, the writing is pretty much on the wall. He said the scan of my pancreas and stomach showed a bunch of undigested food just sitting in my stomach.

I take a 10mg gummy every night and the other night after trying to eat two bites of sausage (I now know that's a mistake) I panicked. I realized I can't eat and that I will die if I can't eat. I'm already in malnutrition! Severe malnutrition - the doctors failed to tell me they diagnosed me while I was in the hospital in February - I found out reading the notes in my patient portal - and none of the medical professionals seem to be very concerned. It's frustrating but you do have to be your own advocate. I'm a member of a GP group on Reddit and many of the members there are on hospice. Something else they don't tell us about GP - it can shorten our lives. My father died when he was 43 of cancer and I always worried about getting in. In many ways, what I have going on is worse. They don't have entire wings of hospitals dedicated to treating GP.

All that to say I am so sorry you are going through this. You are not alone. It is not in your head. I'm comforted having others to speak with but so sorry we are all suffering (literally) with this condition. Sending you hugs and prayers.