Thanks for the link - I have been googling for a few days. Mine started after having mono 7 years ago and has never gone away. I have probably seen no less than 20 doctors and none of them can figure it out. Looking at some of the onset symptoms, they describe what happened to me pretty well, sudden onset of pain, lost 30 pounds in two months, etc. I am truing to find a good rheumatologist in the Fort Myers FL area