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DiscussionHow to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
Replies to "@anniegal Welcome to connect I was told years ago I had RA but Dr here says..."
Is this Ed Wright stay up with polymyalgia rheumatica? My husband's is normal.
Hi Annie, thanks for your welcome. A 2nd or 3rd opinion is a good idea. I was lucky to have been able to see this new Dr who diagnosed me with Sjogren's Syndrome, the "dry eye, dry mouth" disorder. On the 24th of April I return to visit this new Doc, as well as a Rheumatologist. My current pulmonologist folded his arms and crossed his legs and said, "I don't know what's wrong with you." Great. Stay on 40 mg Prednisone. That was Sept 11, 2018. Was having very much difficulty with my breathing, I was gasping like a fish out of water after climbing 1 slight of stairs. He kept telling me to hang tight, do another CT Scan in 2 months. In the meantime, I was having pretty low O2 sat rates. I will probably ask the Pulm why he didn't run more tests, etc. to TRY to find out what is wrong with me. This could have been done last fall. I see $$ signs all over.