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Uterine Papillary Serous Carcinoma: What treatments did you have?

Posted by goldengirl2 @goldengirl2, Oct 25, 2018

Is there anyone out there who has gone through the treatments for this? I have had surgery , and chemo taxes/carboplatin. Radiation is suggested but no one seems to have any data to refer to as we are such a small group I’m guessing. Very nervous moving forward as to what to do.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

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Helen, Volunteer Mentor | @naturegirl5 | Dec 9, 2024
In reply to @speck634 "Hi there, How are you doing now? I just found this message for tonight. I was..." + (show)
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Hi there,
How are you doing now? I just found this message for tonight. I was diagnosed a little over a year ago with stage one a grade 3. I had a hysterectomy and chemo. No brachytherapy.

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@speck634 Welcome to Mayo Clinic Connect and to our Gynecological Cancers Support Group. We are very supportive group here. We support one another by sharing our own medical histories and worries and provide one another with compassion.

How are you feeling today? Would you like to share more about your own journey so that we can support you?

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polkagal | @polkagal | Dec 9, 2024
In reply to @speck634 "Hi there, How are you doing now? I just found this message for tonight. I was..." + (show)
Profile picture for speck634 @speck634

Hi there,
How are you doing now? I just found this message for tonight. I was diagnosed a little over a year ago with stage one a grade 3. I had a hysterectomy and chemo. No brachytherapy.

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Hi @speck634,
I am doing well, thank you. I am 6 years NED, as of this past Nov. and I feel really good. I do not have any major long term side effects from treatment, other than some neuropathy in my feet - and by neuropathy, I mean some tingling and numbness, no pain. Staying on a regimen of B vitamins seems to help me some with that. I am still working - teaching - and lead an active life. Life is good. I am sorry about your diagnosis. How are you doing? Strange, I have not been on the Mayo site for quite some time, but your post stood out and I happened to see it. I'm glad I did.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 22, 2024
In reply to @polkagal "Hi @speck634, I am doing well, thank you. I am 6 years NED, as of this..." + (show)
Profile picture for polkagal @polkagal

Hi @speck634,
I am doing well, thank you. I am 6 years NED, as of this past Nov. and I feel really good. I do not have any major long term side effects from treatment, other than some neuropathy in my feet - and by neuropathy, I mean some tingling and numbness, no pain. Staying on a regimen of B vitamins seems to help me some with that. I am still working - teaching - and lead an active life. Life is good. I am sorry about your diagnosis. How are you doing? Strange, I have not been on the Mayo site for quite some time, but your post stood out and I happened to see it. I'm glad I did.

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@polkagal, good to hear from you again and to hear that you're doing well. Just thought I'd stop in to wave hello.

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polkagal | @polkagal | Dec 23, 2024

@colleenyoung Thank you, I am glad you did and I send a wave back. Merry Christmas!

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bettydee | @bettydee | Aug 25 10:53am
In reply to @bluemeade7 "I just returned from Mayo for labs and the initial CT scan after chemo and radiation...." + (show)
Profile picture for bluemeade7 @bluemeade7

I just returned from Mayo for labs and the initial CT scan after chemo and radiation. Luckily, I have no evidence of disease. It has been four months since surgery and I am progressing well, but still have some side effects that hopefully will resolve in time. These are neuropathy (even with the cold gloves and slippers) some incontinence and some bowel oddities. After the 4th chemo, I am very fatigued, out of breath and have no stamina but with time these things should resolve. My surgery was uneventful and I am recovering nicely. I am so grateful that I came to Mayo for a second opinion, surgery, and have been treated by a terrific team who know how to treat UPSC. Now I am in survivorship mode and on to the next stage of my life.

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I am curious - you indicated you went to Mayo for a 2nd opinion. Did the 2nd opinion differ from the 1st opinion and in what way ?

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