Gosh, this is such a safe, blessed place. @linda1334, I pray you get the help and answers you need. And @sueinmn, thank you for being! We are in Baton Rouge Louisiana and need recommendations from the group for pulmonologists, and rheumatologists (specifically autoimmune specialty) Many thanks in advance.

Hi Sue, I'm in OC, CA. There are a lot of pulmonologists here but I have to stick with those that would be covered by my insurance. So that limits choices to a certain degree. I do have some others on my insurance that I can consult but it's just hard to know if they specialize in MAC treatment as it doesn't generally say on their profiles when looking them up. To be fair, my pulmonologist suggested contacting NJH a couple of weeks ago after I told him that my new ID suggested watch and wait. He said they might prescribe another drug therapy that I could tolerate, but I'm not sure about that knowing all the typical drugs used to treat this disease as I'm already dealing with ototoxicity and neuropathy. I called NJH and I would need a referral approved by my insurance or I would have to pay $10s of thousands out of pocket according to their representative.