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Severe brain fog with possible MCTD

Autoimmune Diseases | Last Active: Aug 26, 2025 | Replies (34)

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I was in a similar position when my illness first began. From my experience, it can be helpful to seek additional opinions. Over time, I have consulted with several rheumatologists, each with their own approach and combinations of medications. Eventually, we discovered a treatment plan that worked best for my body. I’ve also learned that rheumatologists differ in style—some take a more conservative approach to prescribing medication, while others are more aggressive. Ultimately, it’s important to find both the treatment and the management style that you feel most comfortable with.

I wish you the best in finding the right doctor who can accurately diagnose your condition and guide you toward the treatment that works best for you.

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Replies to "I was in a similar position when my illness first began. From my experience, it can..."

Yes I have a hard time believing that it can be just ‘gone’ now. I truely believe that I’ve always had mctd and it’s been worse at some times more than others. This is what contributed to the BII as women with history of autoimmune disorders do worse : get sicker over time. There also may be the long covid illness factor as well! I am out on company STD rn so need a good team of doctors to be able to help figure this out and so I can hopefully feel better someday