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Profile picture for mlabus3 @mlabus3

Thats a tough one.....Decipher is a little high, large cribiform, EPE, vescile invasion, but negative margins. lower grade.

Mine is little more clear cut. In your case, I would definitely get a Cleveland Clinic RO into the mix NOW. If you think about it, your surgeon is really done at this point. Any further treatment and recommendations will be at the hands of an experienced RO, not your surgeon. If anything, your surgeon and RO should be working as a team, which doesnt appear to be the case. In addition, I would not hesitate - if your are not confident - to get another opinion from another COE. My RO at Hopkins is Dr. Daniel Song, he is one of the most experienced at JH and I have received a couple of good recommendations. I am just starting out with him, but adjuvant is on the table.

The whole cribiform thing is kind of like the wild west. Not enough studies and proven diagnostics to make it a clear cut decision. From what I have researched, they large cribiform appears to be aggressive little bastards that are harder to kill. Sorry, get as much info as you can, but IMO, yours is a tough one and ultimately its your call. Good luck, brother.

I wish i had your luck with continence. It only been 2 months, but my progress is slow. I should buy stock in Depends. i should have looked harder for the experts in the newer fascia sparing techniques. more and more people seem to be getting out of the OR without serious continence issues. Tick mark for RP vs. RT.

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Replies to "Thats a tough one.....Decipher is a little high, large cribiform, EPE, vescile invasion, but negative margins...."

Another complication is that I don't think I will be able to travel back to Cleveland (or to any other COE) for further treatment, if needed. Cleveland is 5.5 hours away and I don't own a Concorde so I can't skip on over for treatments during my lunch break. My insurance has an additional benefit that covered my airfare, lodging, and medical expenses for the RARP but my 9-day stay in Cleveland exhausted the per-incident benefit amount so traveling for 30-40 treatment days seems out of the question. Besides, even if they covered my expenses, it's unlikely my employer would let me work from "home" for that long and I don't have enough sick days to cover that duration.

I guess I could consult with a local RO while waiting for my PSA test next month.