← Return to Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

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Profile picture for cynnamon66 @cynnamon66

I am so sorry to hear this. As you may well know, pancreatic cancer of the Exocrine glands (digestive) and pNET of the endocrine glands are totally different although in the same organ.

I have pNET at 1.1 cm that is stable right now.

I just wanted you to know you are being heard and prayers are going up. Please keep us posted. I know this must be so difficult.

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Replies to "I am so sorry to hear this. As you may well know, pancreatic cancer of the..."

I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son has pnet specifically glucagonoma pnet. At present he is experiencing glucagonoma syndrome. He has ALL the symptoms. It is horrible. His Ki67 is < 3%(grade1) but his stage is 4 as it has spread to LN in neck area and chest. It is not in his liver. I have yet to find anyone with this. There are no clinical trials regarding this tumor. Yes, I’ve searched. There is a trial opened for two years that just started but is for NEts. I can get him in that but first his best option is to remove tumor via surgery. I have all confidence in his team. His oncologist is very knowledgeable and gives us hope. His surgeon is excellent! I rarely saw any and I mean any complications from his work. Somehow we will get through this and power on. Thank you for prayers it is appreciated.