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Lymphedema - new support group: Let's connect
Lymphedema | Last Active: 6 days ago | Replies (67)Comment receiving replies
Thank you!
I am currently getting therapy from a licensed OT under a prescription from my oncologist, based on MY determination. (Another story re lack of follow up for after effects of treatment.) I will be under her care until she thinks I’m ready to be set loose - day & night garments, self massage, pump. She makes it sound like maybe another month. Your year long therapy was a surprise based on my experience. I also don’t think I would be a candidate for surgery, but she has concern that the abdomen could become involved and maybe my other leg. I’m at a late level 1, bordering on 2; maybe you are above that?
Cancer is the gift that keeps on giving.
Replies to "Thank you! I am currently getting therapy from a licensed OT under a prescription from my..."
Yes, I am above that…. Level 3+. The greatest and most important issue is getting therapy BEFORE you need it. When radiation is so intense, as it needed to be for Stage IV metastatic, lymphedema is almost guaranteed . It just snuck up on me. One day my ring went on the next day it didn’t. I knew what it was and started therapy, paid out of pocket, until I could get scheduled. I’m just now able to see progress! Your OT/PT needs to be a specialist in Lymphedema treatment! Very important!! I stay bandaged 48 hours at a time…. But it’s paying off.
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Yes, my lymphedema was close to a Stage IV. I also go to a Lymphedema MD who directs this journey. If yours is still in the early stages, stick with the treatment plan as uncomfortable as it is, so that it doesn’t progress. My radiation for Stage IV cancer was very intense and damaged the lymph system.