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@naturegirl5 thank you for connecting with me! I copied my chemo/immunotherapy below. My cycle is every 21 days I’ve just completed 3 of 6 infusions. Next is Sept 8. I have my 1st CT scan on Sept 5 to check progress. I’m doing very well so far. My main side effect is pain that is present in the days after my infusion. The pain starts to go away about 6-8 days after infusion. I’ve had no tummy /bathroom issues. Grateful for that but the chemo pain is no joke. Neuropathy is also present. I’m staying positive but this weekend was tough. I didn’t hear from anyone all weekend. I felt so alone with my cancer but, people have lives to lead and I understand that. It was just strange for it to be quiet after many months of people constantly checking on me. I bet a lot of these feelings are familiar to the survivors on this forum : )

Regimen: BILH OP Dostarlimab-gxly / PACLitaxel / CARBOplatin

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Replies to "@naturegirl5 thank you for connecting with me! I copied my chemo/immunotherapy below. My cycle is every..."

@karina60 This is all so very encouraging. Thank you for sharing your chemo/immunotherapy.

Spending the weekend by yourself and in pain is likely familiar to many of the cancer survivors here. I'm with you. I like people to check in with me. I wonder if your friends and family realized how much you would like that contact? Sure, people have their own busy lives to lead but a little reminder at times can prompt those phone calls or visits. It can be difficult to ask.

It's so good that you are doing well with your treatment protocol even with the chemotherapy pain and neuropathy. One of my friends had chemo/immunotherapy last year for colorectal cancer. She had a lot of neuropathy in her lower legs and feet. During a routine visit to her orthopedic surgeon for a hip replacement she'd had a few years ago they talked about the neuropathy. Her doctor suggested physical therapy (PT) which she had not considered and none of her cancer care team had suggested. She did the PT and found it to be encouraging to get her moving and helpful. Anyway, just a thought.

September 5 and 8 are coming up soon. Will you come back and let me know what you find out with your CT scan?