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DiscussionAnyone having any luck with treating PMR without any specific medicati
Polymyalgia Rheumatica (PMR) | Last Active: Sep 13, 2025 | Replies (71)Comment receiving replies
Replies to "My chart at the rheumatologist's is interesting. Under problems, it lists these: 1. GCA 2. Long..."
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Mine is similar to yours.
The first entry speaks volumes for what was considered to be my problem.
1) Encounter for long-term (current) use of steroids (09/09/2008)
More got added later:
2) Reactive inflammatory arthritis Dx in 1990s (10/26/2009)
3) Polymyalgia rheumatica Diagnosed 01/2009- quiescent on Prednisone taper. Recurrent. Intolerant of methotrexate 10/26/2009
4) Uveitis - Once per year since 1990's (05/24/2010)
5) Trigeminal neuralgia (11/24/2010)
Then a long list of things attributed to possible prednisone side effects:
Tendon rupture, Ventricular hypertrophy, Essential hypertension, Neuropathy, Mixed hyperlipidemia, Glucose intolerance. Borderline Glaucoma with ocular hypertension, Cataracts
Then the big event happened:
Extensive, multiple and bilateral pulmonary embolisms (unprovoked)
Long-term (current) use of anticoagulants
Indication for Warfarin: Pulmonary Embolism (Dx: 12/6/12)
Duration of Warfarin Therapy: Indefinite (Lifelong)
Just so they wouldn't forget I guess the following is listed:
Long term systemic steroid user (04/15/2019)
Lastly;
Long-term current use of tocilizumab (06/20/2019)
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Since I stopped Prednisone, I have also stopped numerous medications for hypertension, cholesterol, glaucoma and even warfarin was discontinued during the years after Actemra was started