Hello Mooty my name is Beryl....I have had PMR for nine years now and have been to the point of taking two Mgs of preds. I went through a time, as you all seem to do, of tapering down but never have I been without pain especially at night were I take a Norco pill , if I didn't I wouldn't sleep.....
Midway through all this I was put on 60mg again as I was.suspected to have GCA. The biopsy wasn't positive .......now I have been taking 3mg. of preds. for eighteen months and have been told not to lower it ......I seem to be getting slightly better as the months go on but it is a very slow process and I don't seem to be slipping back .....I too hope very much one day to see the back of this thing and I am not the sort of person to despair luckily ......
I am fortunate enough to be in Sicily for three months getting away from the rain and cold at home in Oregon .....I somehow made the journey which was a tortuous at times but it was worth it and funnily enough although my muscles were swollen ,not my legs themselves, and it didn't put up my pain ratio as in previous years,.....I am looking at that as a very positive sign .....Beryl