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Worried about carcinoid syndrome

Neuroendocrine Tumors (NETs) | Last Active: Aug 24 4:43pm | Replies (2)

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@jsudjian
I don't see any mention of you having NETs so it doesn't seem like it would be carcinoid syndrome. I have lung NETs and have been having flushing and itching issues the past few years. I've been on octreotide injections for 4.5 years so we thought it might be the NETs or the octreotide, but carcinoid syndrome is less common with lung NETs than GI NETs. As I've changed to a whole foods diet, I've recently determined I have a histamine intolerance to many foods especially some fruits (plums and cherries are the worst so far for flushing). I also suspect wheat. Strawberries, nuts and other foods give me hives. I would suggest trying an elimination diet to see if it's food causing your issues. I have a friend who gets hives from antibiotics so it could be something other than food too. It can be hard to narrow down. Good luck!

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Replies to "@jsudjian I don't see any mention of you having NETs so it doesn't seem like it..."

I've not had scans so I don't know.

Is your flushing and itching constant?

Are you saying that your tumors have not opened up causing the flushing, it's a seperate issue?