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DiscussionGNET Sarcoma-Gastrointestinal Neuroectodermal Tumors
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Replies to "I hope you are doing well. My 17 year old daughter was also diagnosed with GNET..."
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We are also doing CT scans every three months, and very similar timeline as yours. No treatment options were given other than the CT scan and observation for now, since it does not seem like there is a proven benefit of any chemotherapy, immunotherapy, or radiation after surgical excision.