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@rearea1

My PMR began in the summer of 2017 as I was under stress when my mom passed in the spring and my husband was in and out of the hospital. Like others, mine started with stiff neck, moved to shoulders and hips. I diagnosed myself and then met with my GP. She measured inflammation level @ 49%. She eliminated other possibilities and soon I was taking the awful drug, Prednisone at 15 mg. Had all the usual side affect, and now have many more. A few months later my husband passed away and my health ran far downhill. In February 2018 And with the aid of an Eastern Medical doctor, I took some control by changing diet..no dairy, no gluten, no sugar, no alcohol, no fatty or fried foods. I eat protein, (good quality chicken or fish), vegetables and fruit. I have steel oats and eggs in AM. I take good supplements as well. I gradually reduced from 15 mg Prednisone to 1mg (stay on 15 for 4 weeks and then reduce by one mg every 2 weeks). All was going ok ,but suddenly in mid August 2018 fainted and was omitted to the hospital.
Now I am on a completely new path. Out of hospital I increased to 7 MG Prednisone ( the doctor wanted more and I refused). I am on the same food plan but now increasing anti-inflammation foods (fresh pineapple, spinach, turmeric, ginger- blended with coconut water each day). Here is the most important- 3 weeks ago I began with a healer. 6 weeks ago my inflammation rate was 39%. Just this week it measured 6%. Think about what this healer Is doing for me. After just 2 sessions and doing my correct breathing every day..39 to 6. My journey with him included learning how to breath.,learning I was sick because of all the “stuff” such as fear, hate, control, resentment, anger, inability to let love in and out..and naturally a high level of grief..long term crap that gets stuck in our bodies..not allowing room for good cells to generate. I am so happy that I am on my way to full recovery. I also see a medical massage therapist and a chiropractor. The prednisone is now killing my bones.. was told I need hip replacement. Not sure if I do or not, but I am sticking with my healer as I can walk and move without pain.

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Replies to "My PMR began in the summer of 2017 as I was under stress when my mom..."

Hi @rearea1, just read your note above and wonder what are the measurements of the drink incl pineapple, spinach, etc that you make each day. I’ve just been diagnosed with PMR and it’s a very confusing disease!! Am also on prednisone, but having a lot of pain!! Good luck to you.

A little update and question: as I mentioned above, I did faint & fall back in August. I hurt my back and had it treated by chiropractor and massage therapist. My inflammation levels went way down when working with a healer.
Now my mid back muscles (between waist and shoulder blades) and extending around to sides and ribs, are tight as a drum and go into spasms. Getting in and out of bed is difficult..as is the simple act of turning over in bed. I’ve been cutting back gradually from 7 mg Prednisone and now are on 4. Could the reduction in medication be the cause of this new muscle pain? Has anyone else experienced this?