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Profile picture for Helen, Volunteer Mentor @naturegirl5

@karina60 Thank you for sharing your journey. You wrote what many of us have shared again and again. Be that squeaky wheel. Advocate for yourself. You are the expert with your own body. If you feel something is not quite right with your own body then push for answers. Any one of us who has had a cancer diagnosis in the past knows that we are at risk for a recurrence or another cancer. Here is to the wish and hope that you are looking at many more years of life ahead due to your own advocacy.

Would you like to share the kind of chemotherapy you are receiving? How are you feeling?

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Replies to "@karina60 Thank you for sharing your journey. You wrote what many of us have shared again..."

@naturegirl5 thank you for connecting with me! I copied my chemo/immunotherapy below. My cycle is every 21 days I’ve just completed 3 of 6 infusions. Next is Sept 8. I have my 1st CT scan on Sept 5 to check progress. I’m doing very well so far. My main side effect is pain that is present in the days after my infusion. The pain starts to go away about 6-8 days after infusion. I’ve had no tummy /bathroom issues. Grateful for that but the chemo pain is no joke. Neuropathy is also present. I’m staying positive but this weekend was tough. I didn’t hear from anyone all weekend. I felt so alone with my cancer but, people have lives to lead and I understand that. It was just strange for it to be quiet after many months of people constantly checking on me. I bet a lot of these feelings are familiar to the survivors on this forum : )

Regimen: BILH OP Dostarlimab-gxly / PACLitaxel / CARBOplatin