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Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (64)
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Replies to "John, So impressed you were able to get off prednisone so quickly, very happy for you!..."
"I’m feeling very fatigued now as I’m getting to the lower doses but in my gut I think the PMR may be gone, now the struggle is getting off the prednisone,"
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I went through this stage. Once I tactfully accused my rheumatologist of prescribing Prednisone to me because she thought it was what I wanted. I made it clear that I wanted to be off Prednisone. I was worried about adrenal insufficiency because of the overwhelming fatigue. I felt bad afterwards because my rheumatologist helped me so much and for so long. Fortunately, she didn't dismiss me and she was instrumental in helping me get off Prednisone a few years later. As it turned out ... adrenal insufficiency was part of my problem. I was somewhat dependent on Prednisone for a while but I managed to get past that stage too.
You are correct ... it was a struggle to taper off Prednisone after long term use.