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PMR and Flu Vaccine

Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (64)

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John,
So impressed you were able to get off prednisone so quickly, very happy for you!
I’m down to 8.5 mgs after 1 year and 5 months since developing PMR. I’m feeling very fatigued now as I’m getting to the lower doses but in my gut I think the PMR may be gone, now the struggle is getting off the prednisone,
The fatigue has been prevalent ever since the beginning, and very bad at first.
I developed PMR after a very bad virus that took me almost a month to get through, as soon as I recovered I got PMR.
Previously had several Covid vaccines and flu vaccines.
Since I’ve only gotten one flu vaccine and debating to get the flu vaccine again this year.
The bottom line is if you’re susceptible to an auto immune disease, by heritage or by a screwed up immune system system, any vaccine or virus, or stressor can cause it, common sense and medical research will tell you this.
Wishing the best for everyone struggling with this awful disease that seems to affect everyone so differently.
I’ve gotten more help and good information from sites like this than my rheumatologist!!

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Replies to "John, So impressed you were able to get off prednisone so quickly, very happy for you!..."

"I’m feeling very fatigued now as I’m getting to the lower doses but in my gut I think the PMR may be gone, now the struggle is getting off the prednisone,"
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I went through this stage. Once I tactfully accused my rheumatologist of prescribing Prednisone to me because she thought it was what I wanted. I made it clear that I wanted to be off Prednisone. I was worried about adrenal insufficiency because of the overwhelming fatigue. I felt bad afterwards because my rheumatologist helped me so much and for so long. Fortunately, she didn't dismiss me and she was instrumental in helping me get off Prednisone a few years later. As it turned out ... adrenal insufficiency was part of my problem. I was somewhat dependent on Prednisone for a while but I managed to get past that stage too.

You are correct ... it was a struggle to taper off Prednisone after long term use.