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jen3840 avatar

Anyone diagnosed with alpha-Gal syndrome?

Autoimmune Diseases | Last Active: Jan 14 12:44pm | Replies (20)

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Profile picture for 2sk4ths @2sk4ths

I have had alpha gal for about 5 years and it has been a huge adjustment. You have to change your entire life! All the products you use have to change, including shampoo, laundry detergent, toothpaste etc... I have done a ton of research and learned a lot but learn more every day. Make sure you have epi pens, benadryl, steroids, pepcid and an inhaler! Ask me anything and if I don't know I will be honest

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Replies to "I have had alpha gal for about 5 years and it has been a huge adjustment...."

@2sk4ths
What brand of inhaler? Most contain lactose and I can't have that due to the alpha gal syndrome:(
Sorry you have it too!