← Return to Had to stop Big 3, ototoxicity and switching pulmonologists

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Profile picture for linda1334 @linda1334

I don't know, Sue. That's what's concerning. I question the care because in the past when I was taking the Big 3, I was told that I need to do airway clearance and was given no other instruction. So at that time I thought just trying to cough to clear out any congestion was airway clearance and I know now that is certainly not the case. After I struggled with the second treatment plan because the MAC returned, I had to change ID doctors because mine left town. The new one says watch and wait for now and she did mention a vest. My pulmonologist is the one who actually ordered the vest and the 3% saline. When I saw him yesterday, he has now agreed to order 7% saline because I inquired about it and told him about how it helps people in our group here. I have a CT scheduled next week to check the status and have a virtual visit with him to go over the results afterward. So at this point, I feel a bit more comfortable, but I still have to wonder why the airway clearance wasn't clearly spelled out by him and my past ID doctor. I keep thinking that if it was, I might not have gotten it again. I asked yesterday and he just said it's different for everyone, sometimes it works for some people (meaning just coughing). I doubt that. If I don't feel comfortable with the evaluation after my CT, I will try to pursue a visit to NJH, but that will require jumping through a number of flaming hoops because of my insurance. So I'll have to see. I may also get a second opinion from another pulmonologist locally.

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Replies to "I don't know, Sue. That's what's concerning. I question the care because in the past when..."

If you can give us a general idea of your location, you may find some recommendations for a pulmonologist from within the group. If I must face treatment again, I will definitely talk to my doc about whether NJH or Mayo might be recommended, but she is amazingly thorough and has done testing that the 3 previous docs never even suggested.