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Low Dose Naltrexone
Hello. I’ve been on Low Dose Naltrexone (3 mg) for 10 years that was originally prescribed for my arthritis, ME/CFS (Chronic Fatigue Syndrome), and fibromyalgia which I’ve been disabled with for 39 years. But, I also have severe axonal large fiber Polyneuropathy (plus autonomic PN) which has progressed over the past decade to where I use a motorized chair when I go places. I am 73 and housebound due to both the ME/CFS and PN. I have fallen badly several times.
That said, I have not needed additional pain medication though my neurologist prescribed gabapentin, which I refused for fear of side effects and habituation.
My pain is very odd in that my parathesias are strong vibrating sensations in my legs that often wake me up at night. Breathing exercises lessens them. Walking is very difficult because my legs feel like lead weights, I trip often, and my balance is awful. I also get sharp stabbing pains sometimes throughout my body along with other assorted irritating sensations, but overall the pain part of it is nothing I can’t handle so far.
I know that LDN has helped many people with neuropathy and that it is used with great success for many other types of pain syndromes. I have tried twice to go off it (it is not addicting) and both times my back and muscle pain returned within a few days. I know LDN doesn’t work for everyone but it’s been a godsend for me.
I don’t know if my neuropathy would become unbearable were I to go off LDN, but I don’t want to find out as I cannot tolerate the side effects from other drugs.
So, I just wanted to share my story in case anyone here is in search of a safe alternative medication that has basically no side effects and isn’t too expensive. (about $30 a month from the compounding pharmacy). For more info the LDN Research Trust website has lots of info for both patients and prescribers.
Oh and btw, LDN also helps with mood which is extremely challenging having both ME/CFS and PN, and I’ve been able to steer clear of antidepressants.
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That is so surprising! I’ve used 3 different compound pharmacies and all say Medicare doesn’t cover it because it is off label use. Maybe I should recheck,
I’m curious if it’s because of what your doctor says it is prescribed for.
That’s a much better price than I’m paying but I’m not eligible for Medicare yet. I may still try the Publix pharmacy rather than the local independent one I’ve been using. Thanks for your reply.
An acquaintance has recently been prescribed the 50mg dose for reducing alcohol cravings. I can tolerate quite a few meds so now I need to find a doc who will prescribe a 3mg Rx. So far 2 have declined and 2 have yet to respond to my inquiry about a prescription.
Just know when pills are not scored the doses may not be distributed equally throughout the pill. When pills are scored then the pieces have equal doses. One of my pet peeves being told to split or cut a pill that isn’t scored.
@bunstuffer I hate to go against your drs order but please listen to why making your own from a 50 mg tablet is a bad idea. The question was posed to two pharmacists who work with the LDN Research Trust.
Most compound pharmacies in the US will mail LDN. They just need a prescription sent. Mine is mailed to me.
The Research Trust website has a list of pharmacies so it shouldn’t be too hard to find one that will send it to you. They also have printouts you can download for your doctor with prescribing information.
Best wishes!
https://ldnresearchtrust.org/can-you-make-your-own-low-dose-naltrexone-ldn-50-mg-tablet%C2%A0
@bajjerfan The LDN Research Trust has a list of prescribers and pharmacies. Good Luck!
https://ldnresearchtrust.org/LDN_Prescribers
Regarding LDN
i'm taking it for my chronic pain chronic pain they're not developed because of inactivity and deconditioning and a lot of stress. I'm taking very very low dose 0.1 mg and yet I still suddenly feel that all my pain is worse. I am dizzy all the time seems like it's coming from my back of my scalp. I'm wondering if anyone had these kind of side effects when they started. I have taken it in the past with none of these side effects and so I'd wonder how to manage that. Thanks for any feedback.
Doesn't bring up any prescribers in Iowa.
Atorvastatin tablets aren't scored, but I expect that each half is of equal composition. Too bad that it isn't available in 5mg size.
When the powder is formulated, the blend has to be of uniform composition or else how could one 50mg tablet be the same as all of the others in a bottle?
You could try contacting your nearest compound pharmacy to see what Drs. in the area prescribe it.