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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
I was diagnosed with Giant Cell arteritis and PMR in July, started on 60 mg of prednisone daily and now down to 20. I was told that both of these conditions often showed up at the same time. Anyone else have the Giant Cell arteritis? I too fear the neck/shoulder/back pain coming back when I get down to 10 mg per day. SED rate is back to normal, it was 92.
Replies to "I was diagnosed with Giant Cell arteritis and PMR in July, started on 60 mg of..."
Hi @dar9216, welcome to Connect. I have PMR but not Giant Cell Arteritis although the doctor tested me for it. There is another discussion you also be interested in reading through for GCA here:
Groups > Autoimmune Diseases > giant cell arteritis
-- https://connect.mayoclinic.org/discussion/giant-cell-arteritis-20c716/
We all have the fear of the pain coming back but I wouldn't focus on it. You are doing great getting down to 10 mg from 60. Do you have any pain now at 10 mg dosage? Are you still trying to taper off of prednisone?
John
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Hello dar9217 my name is Beryl and I too along with more of us have this worrying condition .....I appear to be ok at the moment having had preds. at a high level for quite a while but always hopeful that this continues ......you sound like you are doing just fine , just keep doing what the Doctor tells you and hopefully it will not come back ....I think that attitude has a lot to do with it so try to think up and keep your chin up .....