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@rogernj67

Oh, ok. I guess that makes Mayo a lot closer for you than me. I just wonder if there is something above and beyond what I am presently being told that Mayo could provide. I will do anything it takes but would a long plane ride be worth it. Do they have anything new there, etc.?

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Replies to "Oh, ok. I guess that makes Mayo a lot closer for you than me. I just..."

Hi Roger, I have no medical training or background but with that said in my humble opinion PMR is what it is. I don't think there is a cure for it. There are only treatments and lifestyle changes you can make to help reduce the symptoms (my opinion). I would keep doing research for yourself and learning as much as you can. My hope is finding that one thing that has been overlooked that will help what ails me. ☺ Mayo Clinic has some good diagnosis and treatment information on PMR here:

Mayo Clinic - Polymyalgia rheumatica
-- https://www.mayoclinic.org/diseases-conditions/polymyalgia-rheumatica/diagnosis-treatment/drc-20376545

Some interesting new information for PMR treatments

Breakthrough treatment for rheumatics: Common arthritis drug has been found to be effective for rare and debilitating rheumatic conditions (January 2017)
-- https://www.dailymail.co.uk/health/article-4143332/Breakthrough-treatment-rheumatic-conditions.html

ClinicalTrials.Gov - Study of Tocilizumab to Treat Polymyalgia Rheumatica
-- https://clinicaltrials.gov/ct2/show/NCT01396317

SP0055 Polymyalgia rheumatica new treatment (new steroid sparing agents) (2001)
-- https://ard.bmj.com/content/60/Suppl_1/A6.2

I'm hoping my PMR doesn't come back out of remission. Prednisone works to get rid of the pain but long term use is not good for me since I also have osteoperosis and thinning bones and fractures are a big risk for me which is one of the side effects.