What would you do? Medication.

Posted by babs10 @babs10, Feb 12, 2024

Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am not the only person who is confused and wary about any decision I make.

I am 68 years old and have significant OP – my T score is a -3.5. I was diagnosed in October. I knew I was genetically predisposed so have regularly exercised since my 20s and have maintained a healthy diet. Since the diagnosis, I have upped the frequency of weight lifting and the use of resistance bands and I am doing what has been advised in terms of diet and supplements.

My Plan D insurance will only cover Prolia and Forteo. I have decided against Prolia and am reluctant to start Forteo. Backing up a little, I enjoy adventurous vacations such bicycle trips and strenuous, long hikes. In September, for example, I hiked a portion of the Camino de Santiago. While training, I slipped and fell three times on big rocks and didn’t break anything. Last year, I took a bicycle trip in Europe. I tried out an electric bike which got away from me and I took a hard fall – it hurt, but no fractures. I know that my bone density is low as reflected by my low T score, but I also believe the quality of my bones is good, and the DEXA score is only part of the equation. One of my doctors said, “Oh, you did your own DEXA test.”

Like everyone, I want to avoid a fracture more than anything so I am willing to consider Forteo, but here is my concern: Is there a chance I might hurt the integrity of my bones by going on it? Might I inadvertently worsen my own situation by taking medication just to improve my DEXA score?

I also want a life plan that needs to last maybe 30 more years. We take a medication for a year or two, then switch to another medication for a year or two. Then what?? None of the MDs I have talked to have had a satisfactory answer. Maybe they are waiting for new drugs to hit the market.

I’m really struggling with the decision. I know I am the only person who can make it, and I will have to be responsible for the outcome, but I would really like to hear what thoughts others have. Thanks so much - any input is welcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for bea4me @bea4me

I'm a 3 time cancer survivor with the most recent case being the worst - Stage 4 Esophageal Cancer. 11 hr. surgery, 2 mo. long deep coma following surgery, my death certificate was prepared. Was in multiple re-habs after hospital release and none provided much in the way of exercise if any. Was on a feeding tube. Osteoporosis set in in both legs due to infrequent movement provided while in all rehabs. Never had a problem before with my legs. Have always had strong bone tests. I am not going to even try the Prolia, Reclast or any other osteo. drugs as the reported side effects are awful & will bring back serious side effects that came with that last cancer surgery which I've worked SO very hard to improve as best I can. Can't go back to those days!! Will see a physical therapist soon. Right lung was damaged in the last surgery so have significant breathing problems with slightest exertion. PT will be a challenge.

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@bea4me, Wow, you have been through the mill. I wish you well applaud your resolve and determination.

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Profile picture for mpc1 @mpc1

68 in three weeks. Had calcium score done today and it was 0, so I will begin my BHRT soon.

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I’m interested to know more about what the calcium score shows. Or means in regard to BHRT.

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Some docs believe “older” women are at more risk for heart disease if they take BHRT. This is what test measures:
: The scores and percentile ranking reported here are intended to enable
the physician to better evaluate a patient's risk of developing symptomatic
coronary artery disease. A full evaluation of cardiac risk should include an
assessment of all conventional risk factors. The scores and percentile rankings
reported herein should be evaluated in this context. The following table
provides a general guideline for the interpretation of the results.

Calcium Score Interpretation
0 No evidence of plaque. The patient's risk of a heart attack is very low.
1 - 10 A small amount of plaque is noted. The patient's risk of a heart attack
is low.
11 - 100 Plaque is present. The patient has coronary artery disease, but only
mild hardening in the coronary arteries. The patient's risk for a heart attack
is moderate.
101 - 400 Plaque is present in a moderate amount. The patient has coronary
artery disease and plaque may be blocking a coronary artery. The patient's risk
for heart attack is moderate to high. Consider additional testing.
Over 400 Plaque is extensive. The patient has coronary artery disease and there
is a high chance that plaque may be blocking one or more of the coronary
arteries. The patient's risk is high. Recommend additional testing.

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Profile picture for gravity3 @gravity3

Thanks dr.sue,
Sorry to hear about the nausea and dizziness on Menostar
I like the ease of the estradiol/testosterone pellet. Do you also take testosterone? I had no adjustment period and no noticeable side effects. As far as the op drugs, I have had the best results on evenity and overall stability since beginning op drugs 13 years ago. No fractures. I would love to hear what results you have using bhrt for bone health

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I'm just starting BHRT with my new functional physician. So far, she has just ordered the estrogen patch and 50mg progesterone capsules. I like the patch, just leave it on for a week. I haven't tried the progesterone. I want to get used to the estrogen first. Also, I don't have a uterus so not sure I need it. How long do the pellets last?

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Profile picture for chuckster1957 @chuckster1957

I'm currently on ADT therapy for prostate cancer and will be for another year and it seems to have caused osteoporosis. I'm 68.

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@chuckster1957, Meds can be devastating that's for sure. Wishing you well.

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Profile picture for drsuefowler @drsuefowler

I'm just starting BHRT with my new functional physician. So far, she has just ordered the estrogen patch and 50mg progesterone capsules. I like the patch, just leave it on for a week. I haven't tried the progesterone. I want to get used to the estrogen first. Also, I don't have a uterus so not sure I need it. How long do the pellets last?

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The pellets last 12 weeks. Testosterone?

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Profile picture for gravity3 @gravity3

The pellets last 12 weeks. Testosterone?

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I took the DUTCH test before I took anything. It showed in the norms for postmenopausal that I have progesterone, no estrogen, and low testosterone. I will be seeing the Dr soon and see what she wants me to do. I will ask her about testosterone. Thanks @gravity3

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Profile picture for drsuefowler @drsuefowler

I took the DUTCH test before I took anything. It showed in the norms for postmenopausal that I have progesterone, no estrogen, and low testosterone. I will be seeing the Dr soon and see what she wants me to do. I will ask her about testosterone. Thanks @gravity3

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Hope the appt goes well for you.

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