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Keytruda & Fatigue: What helps decrease fatigue?
Lung Cancer | Last Active: Sep 29 5:26pm | Replies (45)Comment receiving replies
I’ve experienced musculoskeletal pain so much so that I couldn’t walk or bear weight on my hip. I’ve experienced unusual brain fog periodically and that too was definitely beyond the norm. The fatigue has been extreme but thankfully a few days here and there. When it hits it hits hard.
What I’d like to say is this…that 20% your doc told you is probably much higher. I was told to report any side effects but when I did about my hip & shoulder pain he just laughed and said it can’t be the Keytruda because it wouldn’t be just in one side. I know my body and I know these are all things not normal for me. It seems to me that these docs really don’t want to hear about it. Be your own self advocate and don’t hesitate to stand up for yourself. My doc gave me a course of steroids that worked and I’ve been pain free for now. The cancer scan showed no sign of cancer in my body now and I have 2 more treatments of Keytruda. I’m very happy and thankful but I also will be glad to be off of it. Good luck to you.
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Congratulations on your progress! Sometimes, the attitudes of these doctors can be pretty disappointing; the way they often totally disregard the patients' experience isn't very professional or sympathetic at all. I've been treated that way on many occasions and have been proven to be correct in nearly all of my battles with them over the years. They often act as if you don't know your own body, or what you're talking about. When their solutions don't work, they often just double down on whatever, disregarding the fact that what they prescribed isn't working. They often give up far too easily on these issues and never get to the bottom of the problem. It's a big problem in medicine that really needs to be addressed. Doctors....LISTEN TO YOUR PATIENTS FOR A CHANGE...you might learn something.