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The Importance Of Sharing Experiences

Prostate Cancer | Last Active: Aug 25 8:45am | Replies (13)

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Profile picture for MaxC @cobratk

I know MCC has really helped me, it seams like if you do try and talk about PC everyone says it’s no big deal most men get it and they only have to monitor it and that you will die with prostate cancer not from it. But for me it was a really big deal that I didn’t want to be going through with. My wife has memory issues so I can’t really talk to her about anything and the kids all live in other states so there is really no one to talk honestly with about what you are feeling and having to deal with. I am relatively new at this now six weeks on Orgovyx and starting radiation next Wednesday for 28 treatments. I also suffer with PTSD from Vietnam which makes me not want to talk to anyone about anything. This form has allowed me to open up some and really just reading what others have experienced has helped me so much. It was here that I found out about asking for a Decipher test which my Doctor requested and it confirmed what my Gleason score of 8 said that my cancer was aggressive but at the same time my PMSA PET scan said that my cancer was small and still contained in just my prostate. I thing because you hear so much that prostate cancer is no a big deal it make us deciding to follow the Doctor's plan that much harder. We all want a quality of life and no matter what you do the treatment for PC is going to reduce your quality of life but at the same time it will also increase your life expectancy.

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Replies to "I know MCC has really helped me, it seams like if you do try and talk..."

So true, Max…prostate cancer is NOT teenage acne, although it is often treated as such…just a normal part of the life process.
And for how many decades - centuries even - was PTSD poo-poo’d, called shell shock and other inaccurate names before it was recognized as a true disorder affecting millions.
So many things hidden for no damned reason at all…Hang in there,
Phil

@cobratk
You sound like me. If you read my spotlight I wrote almost the same thing.

MCC is great and I am an introvert also and also have PTSD anxiety/panic disorder which is under control with medications.

I think important Max is to do what you think is right for you. What is done by others was their decision and you need to make your own. Do research, listen to post, get second opinions and then decide what is best for you.

I have a wife that is a 1.5 diabetec with other serious healh issues and recent surgeries. Her personality is one that stressful things really bring her down so like you hard to talk to her .

What I did on my journey with this was I got two different opinions, did research, and then met with my PCP. We went over all and we came to a conclusion that what was best for me based on my medical and mental history.