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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
I am new to the group, having been diagnosed in Sep. 18. with PMR at 67.i was very healthy and walked 3-5 miles every day. Then one day when I got up from a chair I felt a stiffness in back of my thighs and I struggled a little to get started moving. Then over a few weeks the bottom fell out for me. I am still in a state of disbelief, shock, that this has happened to me. Nights are awful.
Replies to "I am new to the group, having been diagnosed in Sep. 18. with PMR at 67.i..."
Hello @rogernj67, I would like to welcome you to Connect along with @beryl and other members here with PMR. I was first diagnosed with PMR in 2007 and was prescribed 20 mg of prednisone which pretty much made the pain go away but I still had some stiffness. I was able to taper off of prednisone in 2010 when the PMR went into remission. It came back in 2016 and I was back on prednisone and gradually tapered off in Feb of this year when it appears to have went into remission again. It definitely puts a crimp in ones style but I think one of the keys is to keep moving and doing some exercise but just not overdoing it so that it brings more pain. Interesting that I was also 67 in 2010 when I was first diagnosed with PMR.
You mentioned nights are bad. Have you mentioned it to your doctor or rheumatologist? I'm wondering if they could spread your medication dosage out or take some in the morning and some at night. I never needed to do that but maybe others can share how they deal with the pain.
John
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Hello Rogernj69 my name is Beryl and I too have PMR....glad you found us as I am pretty sure you will feel better about your condition being able to talk to people in the same position .....I feel for you as it is bad to be an active person and all of a sudden you can't do the things you used to do ......talk to us and we will try and help you with our experiences.......