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Please Read:
For anyone experiencing Dysautonomia, Pure Autonomic Failure, or Multiple Systems Atrophy, what symptoms do you have? Does your hypertension occur very rapidly and extremely high, and often accompanied with unbearable headaches and chest and arm pain? Do you also experience supine hypertension? What are the lows and highs with your blood pressure? Mine are extreme. Have you eventually experienced involuntary whole limb jerking? What about “spells” in which you become physically frozen all over, with blank staring (no blinking), unable to speak, move, or respond to anyone. The only existing ability is to hear until the spell passes. I would like to connect with anyone that has these symptoms. It has been a 20+ year journey.

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Replies to "Please Read: For anyone experiencing Dysautonomia, Pure Autonomic Failure, or Multiple Systems Atrophy, what symptoms do..."

Hi, I have PAF, but have not had any of the symptoms that you describe. Mine are dysautonomia, (feeling dizzy or faint upon standing from a sitting position). Lower energy, sensitivity to heat, weakness in legs going a set of stairs and then feeling light headed. Digestion issues and occasional bouts where I am walking and loose all energy and have to sit. I think these are somewhat typical PAF issues although there seems to be more that other have.
Good luck with finding the cause of your issues.