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Severe brain fog with possible MCTD

Autoimmune Diseases | Last Active: Aug 26, 2025 | Replies (34)

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I was diagnosed with mctd Sept of 2024 and they prescribed hydroxychloroquine which really didn’t help. I went to get a second opinion in May this year and that rheumatologist retested labs and she didn’t think I had mctd and I haven’t been able to get in to see and talk to her again about this and why I would have it and then 8 months later not have it as my brain fog : fatigue remain. Any suggestions? Try another rheumatologist??

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Replies to "I was diagnosed with mctd Sept of 2024 and they prescribed hydroxychloroquine which really didn’t help...."

I was in a similar position when my illness first began. From my experience, it can be helpful to seek additional opinions. Over time, I have consulted with several rheumatologists, each with their own approach and combinations of medications. Eventually, we discovered a treatment plan that worked best for my body. I’ve also learned that rheumatologists differ in style—some take a more conservative approach to prescribing medication, while others are more aggressive. Ultimately, it’s important to find both the treatment and the management style that you feel most comfortable with.

I wish you the best in finding the right doctor who can accurately diagnose your condition and guide you toward the treatment that works best for you.