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DiscussionHow to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
Replies to "Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again...."
Hello Susie 1950 my name is Beryl and I am one of the unfortunate ones that has had PMR for a number of years .....most people I believe get over this thing in a couple of years or less so don't be discouraged at the longevity that some of us have taken to recover.......keep warm and onwards and upwards.....best of luck.....
Yes Susie 1950 you will see that the frustration of not being able to go and do things in the garden and being as active as we would like to be is common with us all .....but be good and do not over do it in any way give yourself a chance to recover .....Beryl
@susie1950 there's no golden rule for tapering down on prednisone. I'm sure they are trying to lower the dose as quick as possible but you might want to raise it up to 30 if you are still in pain when you drop to 25. 40mg to 25mg is a pretty big jump. I was started at 20mg for both occurrences of PMR and I tried to go down by 5 every week or 2 weeks then if I had any pain I would go back up for 3 days to the previous dosage, then go down 2-1/2mg instead of 5 to see if that worked OK. I'm sure your doctor will work with you to come up with a tapering plan that works for you. We are all different so there's no one answer that works for everyone. It is really good that you are active. With PMR it's important to keep doing some exercise but just not over do it.