← Return to Clofazamine and rifampacin

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gemini1956 avatar

Clofazamine and rifampacin

MAC & Bronchiectasis | Last Active: Sep 2, 2025 | Replies (15)

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Hi Marianne, wow you are great to be able to tolerate 5 antibiotics for your MAC. I was on 3 for 14 months and was only clear for a year and the MAC returned. I found the treatment tough going and my kidneys were damaged by rifanpacin. I did not research the whole thing enough. When I mentioned feeling ill, itchy etc I was told that it was unusual. I am not keen to go back on any antibiotics as they wrecked my gut. I was not told how I could avoid the various side effects plus I lost a lot of weight. I wish you all the best and hope you get through this. This site is great as you can compare notes with others and it gives your peace of mind. I do a lot of airway clearance and I exercise. I feel ok despite having NTM and bronchiectasis. I get very tired but have learned to pace myself.

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Replies to "Hi Marianne, wow you are great to be able to tolerate 5 antibiotics for your MAC...."

Thanks so much for replying. It’s easy for the docs to prescribe - they’re trying to do their best - BUT they, themselves, AREN’T on the regime so it’s hard for them to relate to the journey we’re on. As a holistic practitioner, now retired, it’s really tough to take on board the level of ‘stuff’ they urge me to take. I have only been on
regime 2 weeks but already feel I’m drowning in the regime. The thought of skin colour changes, depletion of hearing and eyesight is, frankly, utterly depressing. I already want to quit and face the future without the drugs. So daunting but the drugs are not right - and I feel overdosed already. 😢 Keep strong. X