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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
My sister has had PMR for two years. Started out at 40 mg of prednisone. Now down to 1mg but pain is getting bad. Her neck is one of her sorest spots. Living with chronic pain is so hard.
She has seen rheumatologists in her area (Northern MN) but not a lot of help. Does anyone know of a doctor at the Mayo in Rochester that deals well with PMR?
Replies to "My sister has had PMR for two years. Started out at 40 mg of prednisone. Now..."
Dear Texas freedom , sorry your sister has this very debilitating thing called PMR......I think John has put it in a nutshell ....
My name is Beryl and I have been unlucky enough to have PMR for a long time as has John...
I am on a low dose now and am doing so much better.....I think if you can follow Johns advice
you will be looked after very well and will feel very much more in control of the situation......good luck
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Hello @paulamhp -- Welcome to Connect. I also have PMR but it's now in remission. I was diagnosed at Mayo Clinic Rochester by Dr. Thomas Osborne...really good experience for me to have him for my rheumatologist. I think pretty much any doctor in Rheumatology department would be OK as they work as a team when dealing with difficult cases. Here's a link with all of the ones available in Rochester:
Rheumatology - Doctors
-- https://www.mayoclinic.org/departments-centers/rheumatology/minnesota/doctors
It may just be a matter of increasing the dosage by 1 mg prednisone. I've had 2 occurrences of PMR and when tapering off of prednisone both times I bounced back and forth between 1 and 2 mg dosage then between 1 mg and 1/2 mg until I was finally able to stop taking it and the pain didn't come back. Dr. Osborne was the one that really helped me come up with a tapering plan when I first was diagnosed with PMR.
John