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It’s like walking on a balance beam. It’s so hard not to correct someone who is obviously getting it wrong. My husband has Parkinson’s with dementia and delusions. He can wake up in the middle of the night and think that a person is climbing in the window or standing at the end of the bed. Look, he’s not working with a full deck any more! Rather than try to contradict him, I try to reassure him. I tell him I’ll check and then I let him know it’s okay. Once he was dreaming that we were in our boat and it was headed for the rocks. I told him that I was taking control of the wheel and I was steering the boat into the harbor and tying up at the dock and we were safe.He calmed down and went back to sleep.
I also just react occasionally and attempt to correct his misconception about something when he’s watching the news. It’s pretty useless! I have to remind myself to back off. He’s just not the person he was. This caregiving job was not something I expected to have in my late 70’s. Retirement, travel to see our children and grandchildren, enjoyable companionship after fifty years together, all gone. Thanks for listening.

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Replies to "It’s like walking on a balance beam. It’s so hard not to correct someone who is..."

I hear and understand what you are saying and living. It is tough when one starts to have difficulties in talking to our spouses. I know it makes me feel alone.

I understand completely. I’ve been with my significant other for over ten years. His sons are in their fifties and could care less about me. I’m pretty much all alone. Friends have disappeared. Let’s face it, we aren’t much fun as John is probably heading into the later stages of dementia. Thank God for my two kid, but they already took care of their own father who died of cancer. I just try to take it one day at a time knowing he will end up alone in memory care. He cries just thinking about it and so do I. We both hope and pray he dies before that. Why do we all insist on staying alive? Live longer for what? We should be able to die in peace. Sorry, not much help, but know you are not alone!