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Have you successfully treated SIBO?
Digestive Health | Last Active: Mar 11 7:18pm | Replies (56)Comment receiving replies
Please investigate Mast Cell Activation. Most physicians do not know anything about it. My daughter was diagnosed at Mayo Scottsdale about 6 years ago by Dr Brent Goodman. He also diagnosed POTS and Ehlers Danlos. Those 3 diseases are called "the trifecta". The doctor is a neurologist. Look him up. It looks like he is not still at Mayo but is still affiliated. He might be able to recommend a doctor in your area. Once my daughter got the right medication, SIBO quit coming back. Mast cell has only been a recognized diagnosis for under 20 years, which is why it is difficult to find a doctor.
You can find info about the disorder on the Mayo website and other sites online. She had to find a doctor where she lives and found an allergist who has made mast cell one of her specialties. Feel free to let me know if you have questions. I will answer if I can or if she can.
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Replies to "Please investigate Mast Cell Activation. Most physicians do not know anything about it. My daughter was..."
@ggr hi, i would like to know that did your daughter have allergic reactions to things she ate, like i eat veggies and my face becomes flushed after a while and i sneeze a lot during the months of july august and September, i can only eat meat for now rest anything else i eat like veggies of any kind i get too much gas and bloating and constant constipation which doesn't even fully resolve with laxatives, my heart rate has been also shooting up during normal tasks everything started together high heart rate, constipation, bloating,burping, allergies and congested nose, please let me know did your daughter have any of these symptoms, thank you
@ggr I am dealing with the same issues with mast cell symptoms and sibo. I would love to talk to you, or your daughter, if you all are willing to share info on what mast cell meds she is taking that helped her Or the doctor/ allergist that helped her. I am so desperate for help. If you are willing to respond to this message, I would be so grateful.
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@ggr- Thanks for posting. Mast cell activation looks nasty. In my case, The GI-MAP report shows four specific bacteria as the root of the problem- however, AFAIK it is not possible to treat for specific bugs.