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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
@helpforpmr I have learned something this week. Hallelujah! Not for WHAT I learned but that I actually learned something. Anyway, I have had a sharp pain about halfway between my left shoulder point and my nipple. I learned just this week that this pain is probably one of the pain points of fibromyalgia. For years I have been blaming it on hATTRwt! Can you believe it? 60 doctors or so in the top clinics of America; all wrong.
Replies to "@helpforpmr I have learned something this week. Hallelujah! Not for WHAT I learned but that I..."
I'm tagging the following members who discussed Giant Cell Arteritis in a post to see if they can offer any input for you. @crhp194, @paulinef, @crhp194, @anya do you have any information you can share with @sallygrosse ?
Sally, can you share why you think you might have Giant Cell Arteritis?
Mayo Clinic has some information on their website for the symptoms of Giant Cell Arteritis here:
https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758
John
My doctors made me crazy about Giant Cell Arteritis. Several times I have had pain in my temples and called them in a panic. Once I even went to the Bascom Palmer eye institute emergency room. I hope you are able to rule this out by speaking with your Rheumatologist. When I questioned my doctor about the right protocol if I felt a symptom he said that he would put me on an increased dose of prednisone. As it is, none of my frightening incidents were the feared complication. Good luck and hope you don't have it.
From my limited experience, Sallygosse, giant cell arteritis does not have symptoms. It can show up,in blood tests but these tests are the same as for PMR. My giant cell arteritis was done is covered during open heart surgery for an ascending aneurism. The surgeon thought he saw evidence of. GCA, and the laboratory at Mayo confirmed that. Unlike PMR, I readily had no idea that I had GCA. My treatment is prednisone and methotrexate. Good luck to you. Carol
Thank you ! That makes me feel better. I am out of the country until next week and will see my dr.then. I have only been on prednisone for one month, at 20mg. My thought was if I had developed GIA that the dose I am taking should take care of
it for now. I have had pain in my temples then this morning woke up with jaw pain. Nothing terrible, but enough to concern me. Thank you again for replying!
Thank you!
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Can anyone tell me if they have developed Giant Cell Arteritis? I understand that can happen with PMR. I am on vacation and am fearful it is happening. Thank you for any input.