← Return to Living with Neuropathy - Welcome to the group

Discussion
Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (6621)

Comment receiving replies
Profile picture for bobo333 @bobo333

Hi I am new to this group. I have a strange form of neuropathy that stemmed from nutritional deficiencies that happened in 2012 when I had a virus and painful cramping and then all the food came through me undigested. My feet were blue and I lost over 35 pounds but the gastrointestinal doctor did nothing to help me get nutrients. She couldn’t figure out what it was but in retrospect I am very frustrated because by not getting any nutrition to me she caused this to happen to me. I have nutritional neuropathy that got better after 7 a half years but ever since I received my second COVID vaccine and had scurvy from malabsorption in 2021 the front of my lower legs starting at,the knee and going down the front and inside of each calf I have hot skin and vasodilation. My legs are bright red and so painful in the front but normal and while skin in the back. I have one doctor out of state who is a vitamin guru but he is very busy and not in my city. We communicate by text.

I have damage to my autonomic nerves and it can improve if it is treated quickly. I got better initially and then COVID and a crazy misdiagnosis and hospitalization caused me to have a relapse. Does anyone else here have nutritional neuropathy or neuropathy brought on by nutritional and vitamin deficiencies z.

Jump to this post


Replies to "Hi I am new to this group. I have a strange form of neuropathy that stemmed..."

Welcome @bobo333, It sounds like you have been through the wringer trying to get your neuropathy diagnosed and treated. My neuropathy has been with me many years and started in my toes as numbness. I've never had any pain with it, just the numbness and some tingling at times. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. I don't believe my neuropathy was caused by nutrition or vitamin deficiencies but I do take vitamin supplements known to help with neuropathy in hopes that it will prevent any further progression. Here's some information on this cause for neuropathy:

-- Nutritional and Vitamin Deficiency Neuropathy:
https://www.foundationforpn.org/causes/nutritional-and-vitamin-deficiency-neuropathy/
While you wait for other members to respond to your question, here is a search of Connect showing the posts and discussions by members mentioning neuropathy from vitamin deficiency - https://connect.mayoclinic.org/search/?search=neuropathy+from+vitamin+deficiency