← Return to Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

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We seem to go from home few weeks then back to hospital. He just got out yesterday. His body is a clot making machine. Eliquis was failing. He now has an IVC filter and I give him 100 mg lovenox twice a day. Due to heart failure he takes 20 mg Lasix every other day and 12.5 mg of metoprolol. His surgery has been postponed until September or October. He also is now getting octreotide 30 every 3 weeks ( twice a month). Since functioning blasted tumor causing every symptom known just trying to get control. His glucose is under control at least! I’ve gotten that thing down from 9.8 to 7.1. Goal is below 7. He is intermediate risk for surgery but need that primary tumor out. His oncologist has been talking with NIH. We see oncologist now twice a month and have appointment 26, August. We are plugging forward, I will never give up till he tells me to do so. My research is now carried in a file folder, big one! I’m grateful to have ability to access these statical results. It is hopeful.

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Replies to "We seem to go from home few weeks then back to hospital. He just got out..."

I so appreciate your update, @llr9f. My thoughts and best wishes are with you and your son. He is so fortunate to have you on his side. Your medical background and your love and dedication make you a remarkable care giver. Keep sharing, I am here to be a listening ear.