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Any one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: Aug 27, 2025 | Replies (215)Comment receiving replies
Hello @rkklinger and welcome to Mayo Connect. I really appreciate your post. Your husband's level of activity is encouraging to us all! It does show how NETs is a chronic disease and one that can be lived with for many years. To those in our group who are newly diagnosed this can be good news. You also demonstrate the importance of maintaining regular follow-up appointments.
Do the tumors in the skull cause him much discomfort?
Replies to "Hello @rkklinger and welcome to Mayo Connect. I really appreciate your post. Your husband's level of..."
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No. He doesn't seem to have any pain from the tumors. He experiences pain in his left side back after eating at times. He has to lay on that side and take Gas=X. It usually subsides within 20 minutes especially if he is able to lay down.