Neuropathy in feet and limited toe movement?

Posted by plbelanger @plbelanger, May 15, 2020

Just curious as I was diagnosed with peripheral neuropathy in the beginning of this year but have yet to see a neurologist about it (postponed till end of June due to COVID19). I have constant pins and needles, numbness, pain in both my feet. It's gotten worse over the years (been dealing with it for ~10 years and never went to a doctor about it due to lack of insurance) and now I can no longer even bend my big toes at all and even bending any other toes are rather difficult. Just wondering is this common...anyone else have this?

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I have limited toe movement. My feet feel numb, mostly, with the pain mostly in my toes. Skecher shoes help a lot, as does a THC ointment.

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Profile picture for dckuke @dckuke

He is the one that started treatment for severe plantar fasciitis that has lasted 20 years and began trying to several meds for neuropathy. Actually he and family doctor collaborated. After many tests and several appointments with my first neurologist, he only gave me a diagnosis and agreed with the prescriptions I was taking. A second neurologist gave me the worst medical experience that I had ever had--he was only interested in surgery. With much research and consultations, it was clear, my current doctors were just as up to date on treatments as these specialists. I started with Gabapentin, which did almost nothing for my pain, then Cymbalta , which caused severe memory issues. We finally, tried Lyrica, which helped greatly with lesser side effects--slight dizziness. My podiatrist started me on Tramadol and eventually elevated the dosage to this point--slightly over normal dose. Pain doctor tried Nucynta, which worked very well for pain--but of course the numbness was much more bothersome and very expensive. I finally decided at that time that Lyrica/tramadol left me with a lot of pain and discomfort, but it was very manageable. The pain doctor had suggested implants--but my disease has developed quickly and spread to hands so I elected not to do that--From other disease and bad joints, I have had one major surgery per years for my entire retirement, so not interested to additional ones. At this point, I am accepting being down for the worst days and getting around as well as possible for the better ones. I still cannot walk far or fast, but am able to do light workouts and ride a stationary bike several times a week. I still have seen no reason to return to neurologist.

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This is a horrible condition with very little treatment options. Mine started about one year ago. I'd had several surgeries on that foot so I guess it doesn't surprise me that I have nerve issues. I feel like I can't trust my right foot. I'm going to need to use a cane I guess. Best of luck to you. I find that gabapentin does help. It's better at night and in the morning. But as I'm up and around it gets worse throughout the day.

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