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DiscussionHave nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?
Epilepsy & Seizures | Last Active: Sep 3 7:06am | Replies (63)Comment receiving replies
Replies to "I have had seizures since 2012 after I was rear ended by a drunk driver. I..."
@nbean08
Hi Nancy!
First, welcome to our group at Connect.
I'm so sorry to hear you're going through this experience.
Unfortunately, many of us have already had the experience of feeling dismissed by doctors. Dan (@dannoyes) started a discussion about this that you might find useful:
Have you ever felt ghosted by your doctor?
https://connect.mayoclinic.org/discussion/have-you-ever-felt-ghosted-by-your-doctor/
As I have experienced myself recently and shared here in this discussion, one can have both epilepsy and PNES. There is an excellent and very informative webinar by the Epilepsy Foundation about PNES and epilepsy that I'd like to share with you:
An Overview of Psychogenic Non Epileptic Seizures (PNES) - Epilepsy Foundation
Have you had a Video EEG (EMU monitoring) yet? This is the gold standard for distinguishing between epileptic seizures and PNES.
I'm tagging @dannoyes, who also has both epilepsy and PNES and has been treated at Mayo Clinic.
You deserve proper evaluation and treatment. Please don't give up advocating for yourself.
Chris
Connect

I would definitely find a new neurologist. If you go to Epilepsy Foundation of America you should be able to search for one in your state. I went through 3 neurologists before I was referred to a epileptologist. They specialize in epilepsy. I am now 12 years seizure free. I went through numerous medications & nothing worked. I then went through a lot of testing & had left temporal lobe surgery in 2013.