Hi,
I am 4 weeks post TORS and double neck dissection with primary unknown as well. My drs are fantastic and said that my body must have healed itself. I had two options. 5 weeks of radiation (95% survival)or come back in 3 months to monitor (85%) I opted for option 2.
To back track…it took me a year and a half to find my SCC sitting in a lymph node on my carotid artery. All the drs Told me I was having a nervous breakdown- until the lump appeared on my neck.
I live in Memphis and the drs here couldn’t tell me where the primary cancer was after removing the tumor and wanted me to do 7 weeks radiation and chemo….that is when I reached out to Mayo for a second opinion.

I got screwed out of my long term disability because my NP didn’t put all of my health issues down. My boss insisted on FMLA but drs kept passing the buck….if somebody would have just listened to me….my fmla ended November 1 and the lump appeared in December.
I don’t regret one minute of making the decision to go to Mayo AZ. And if you can do it….do it!
I got more answers on my first visit than I did in 3 months of visits in my own hometown.
I pray for your peace and to let you know you are not alone. This journey is hard.