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Help for my sister

MAC & Bronchiectasis | Last Active: 23 hours ago | Replies (21)

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Profile picture for blm1007blm1007 @blm1007blm1007

Doing all that one needs to do for oneself with Bronchiectasis is time consuming.
For me it is best to nebulize every day to clear the lungs. As one person said to me "you wouldn't go without brushing your teeth as needed so why would you not do what helps loosen the mucus to clear the lungs to hopefully avoid an infection or a worse infection." Some people nebulize three times a day in order to clear the mucus.
This disease, as the NJH lead doctor said to me, is the disease that requires the most work.
Yes this disease can be a life sentence, certainly not a death sentence, of what to do, how to do it, and when to do it all.....meaning your time schedule centers somewhat and greatly around the nebulizing lung clearing methods which can be at least an hour for each session. Each person, to a certain degree, has to figure out what schedule and how it works best for them.
I also am trying to figure out how I can travel considering my best efforts with keeping up with the nebulizing that truly helps me get the mucus up and out....which is a must in order to stay well and function fully.
I am sure you will have others here on Mayo who will explain, also, how it is for them and what they found their way to doing for themselves.
It is a learning process. It takes time to grasp all and figure out what is best for ourselves with what helps in keeping the lungs clear to avoid worse problems.
I did not start the antibiotics and so far the infection is not getting worse and I feel fine. I have a low count of MAI.
Barbara

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Replies to "Doing all that one needs to do for oneself with Bronchiectasis is time consuming. For me..."

I appreciate your response Barbara thank you so much. It really does sound so involved and now I’m beginning to understand a little bit better what she’s going through. I’m so glad I found this website to help me get those answers. I hope one day they can find a cure that knocks this infection out for good.