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Hemiplegic migraine

Headache & Migraine | Last Active: Aug 25 10:09am | Replies (45)

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I had been diagnosed with Hemiplegic migraines years ago when I had stroke-like symptoms that landed me in the ER several times. They didn’t last long and I rarely got a headache. Until about 2 weeks after I took the COVID vaccine. I noticed the symptoms of light-headedness, forgetfulness, episodes where I couldn’t speak or compile sentences and others returned. As I was waiting for testing with my neurologist, a full blown attack happened and I was put into the hospital overnight for testing. That’s when I was actually diagnosed with hemolytic migraines. I was told I could not drive or work because the attacks made one side of my body go numb, or I’d go blind in one eye or I would be unable to focus or speak correctly in a conversation. They tried different migraine meds and I went back to work 3 months later. I got better and got off the meds. But now I’m getting some of the symptoms again. I wake up tired with a swoosh feeling in my head, mild ringing in my ears, brain fog and my friends and coworkers noticed I say some off the wall things during the day. I’m trying to control the symptoms so I don’t get a full blown attack like I had years ago. I read Magnesium and Vitamin B2 are good supplements to try. Also stay away from ingesting the “5 C’s”. Anybody with a similar problem out there? What have you tried?

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Replies to "I had been diagnosed with Hemiplegic migraines years ago when I had stroke-like symptoms that landed..."

Welcome to Mayo Clinic Connect, @loupy. I wanted to let you know I moved your post here to an existing discussion on hemiplegic migraine so you could talk with others such as @guderianj @azza1 @vahank @danralph and others.

Hi Loupy. My, still difficult to think,… I got Covid 1st then all the things you describe happened to me. Drag my foot. Can’t think, talk. Shake. Nothing mild about it tho. I’m glad you had a break and sorry they’re coming back. The terror in the beginning when I had no idea what was going on. 3 times 1 day I figured I was dying. The 1st 2 I figured what’s the point? I’d rather go here than at the hospital. The 3rd I went to ER. Guy just said not even looking up, you’re not having a sroke. That’s it. Ok, well, that’s good. Gave me a gabapentin. I can’t imagine what it was like to continue work. I was going thru this everyday multiple times. I couldn’t leave my room. Just thinking of that is terrifying. I had no idea what was happening. It’s worse now but at least I know and I learned, for the most part, not to panic.
Good luck. Haven’t been here long and it’s still uncomfortable sharing but not as rough as keeping everything inside.