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Neuroendocrine Tumor

Neuroendocrine Tumors (NETs) | Last Active: Aug 23 12:03pm | Replies (14)

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Hi there,
I'm new here. Doctors diagnosed me with a neuroendocrine tumor in the terminal ileum with metastases to the liver at the beginning of this year. My surgery was in March. They removed the tumor along with some lymph nodes that were compromised and my gallbladder. Unfortunately, they could not debulc my liver nor resect it. I started the Lanreotide injections in April, and as per my recent CT scan, there are no new growths -except for a tiny one on the same spot the previous one was located- and things are staying in place. Although now I have a fatty liver. I'm not a drinker, nor I eat greasy food. Has anyone experienced this problem?
Thank you.

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Replies to "Hi there, I'm new here. Doctors diagnosed me with a neuroendocrine tumor in the terminal ileum..."

I just had a PET scan Wednesday and in the test results I was also diagnosed with fatty liver..

Yes, I have had a significant increase in fatty liver over the course of a year of liver MRI’s. I am on Octrotide injections. I do not drink but I gained 40 pounds after my diagnosis. My oncologist thought I might die of fatty liver before cancer so I saw a liver specialist at Mayo. I have a genetic metabolic dysfunction associated steatosis hepatitis. My sister has the same and advanced to cirrhosis at age 61. My brother died of this at age 68. Neither one drank alcohol. There is getting to be a higher occurrence of this because of obesity. I am 67 and the good news is liver doctor says I can reverse this if I lose 40 pounds and keep it off for at least 4 years. Wish me luck- I am almost down 20 pounds. I like to say I am the only person who gains weight with cancer.

Yes; fatty liver showed up on scans/labs following cytoreductive/debulking surgery for GI mets & now on Octreotide shots. Wondering if this is due to having gallbladder removed & liver resection.