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What is Life like after Bladder Removal?

Bladder Cancer | Last Active: 1 hour ago | Replies (35)

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I had RC 8 wks ago. So far training my neo-bladder is going ok. I don’t think it will ever work as well as the original but I had not planned on it. I had a tumor just outside my bladder and within a week I was in surgery having my bladder removed. I was diagnosed in 2023 and I have gone through 6 wks of BCG but had tumors after, then 6 wks of chemo in my bladder had no tumors inside but one outside the bladder. Had no lymph node involvement and had a clean CT at 4 wks. Only had it because I got hydro nephrosis in my right kidney. I’m showing no evidence of disease now and feel blessed. I live in SETX and after researching doctors decided on urology oncology at St Luke’s Baylor in Houston.

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Replies to "I had RC 8 wks ago. So far training my neo-bladder is going ok. I don’t..."

I happy your surgery is over and you are recovering. My husband is scheduled for RC NB in September. How was it for you that 1st and second week? Were you able to do any stairs?

Glad to hear it went well! It took about six months for my training. If you do the exercises I'm sure you'll make progress. Patience is key. I hope things continue to go well for you.