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DiscussionShould I go to National Jewish Health even though I'm new at NYU?
MAC & Bronchiectasis | Last Active: Jun 5 1:04pm | Replies (34)Comment receiving replies
Replies to "hi kathyjjb, I will look at the Raintree system. My son is on an infusion- 2..."
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Hi Jan,
That's confusing. Is he being seen at a BE/NTM clinic? From my perspective and all my doctors, nebulizing with 3% or better yet 7% saline is a vital part of the treatment. Maybe there's a reason? Best to find out. When I was at NJH in May, my doctor suggested I use the Aerobika instead of just a nebulizer cup (for saline) and a mouthpiece. She also wanted me to use the vibrating vest but since I am prone to vertigo, I could not use. You can google Aerobika and take a look. Sterilization after each use is important. Yesterday, I met again with my NJH doctor and she had me try the Volaris oscillating machine-which shakes up the lungs without shaking my head-so I will be using that. I just got my 2nd negative MABs culture test results, the 3rd is negative but it's very preliminary and I still won't know for another 3-4 weeks. Recurrence and reinfection rates are high, which is why I have taken precautions in the home and nebulizing-2x/day with 7%. My CT showed a new nodule and she's not sure if it's the MAB or a mucous plug-hence the Volaris and another CT in 2 months.