May I ask how high was your dosage?

I understand this tapering off. I seem to manage pretty well on 5b mg, but even when I go down to 4 1/2 mg, I can tell the difference. I know I need to get off of the prednisone, but I also have to be able to get up everyday and function. Very frustrating. Some days, I am almost free of pain and other days more pain. I use the scale of 1 to 10 for pain. Today I am at a 5 which is great. This last week-end it was about a 7.

My dr seems to have a different way of tapering: I am at 10mg now and last 2 or 3 weeks I have been on 10mg alternating with 15 mg/d.
I know the next order from her likely will be 10mg alternating with 5mg. But I am already noticing the profound tiredness and the achiness of the body. My dr has never ordered half mg during tapering.... but interesting concept.
I also go to naturopath clinic which gives me adrenal support during the tapering days. After I take the tincture, my body feels hot...
I dread this downward 'trip'...
A

I am now on 4 mg of prednisone. I am going to try this for a month, then try to go down to 3mg. I have not had any success in the past getting past 3 mg. (seems insane doesn't it). I think sometimes you have to figure out what works for you. I don't think my physician really knows what to do that is effective, so I am doing a little experimenting on my own. I was having a lot of pain in my feet, now it seems to be mostly in my upper arms (biceps). That is what is happening this wee, who knows about next week. I hope more studies are done to identify and cure this illness.
Keep moving people!

wow - sorry to hear you have such hard time even from 4 to 3mg (such low dose). I am currently on 10 and I doubt this dose is supporting or sustaining my platelet. Therefore I am thinking about asking tmy doctor to consider 10mg one day and 5 next day type of tapering...I am so fearful of this downward trip from past experience.
My tendonitis at shoulder is keeping me in throbing pain 24/7- I do take Tylenol but it is not an anti-inflammatory drug. ?Aleve is anti inflammatory but the pharmacist seems to think it (Aleve) may drag down platelet. I sure dont need that at this point.
I use LivRelieve and I use Voltaran and I use Traumeel gel (homeopathic). 2 days ago I got hold of a medicinal balm contarining 500mg THC in 30mL. The THC cream only tried once and I had an odd sensation from it so I stopped. (I never smoked marijuana.)
So far I feel all of the topical stuff only ease the pain very temporarily......
Bottomline is I am quite miserable....

I haven't thought of the the cream. Probably can't access that Bc I'm n Texas. Worth looking into. I'm a believer in medical marijuana.

I have found a cream online called deep blue rub. It is a little expensive but that's what I'm using