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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (6621)

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I usually use a fan on my uncovered feet to reduce the heat, warmth, and swelling in my burning feet. It helps as I don’t like the side effects of different meds to try. Some of the supplements I’ve tried cause me to itch terribly as I have neuropathic itch. I’m thinking of trying LDN (low dose naltrexone) to see if it will help. I empathize with what you’re going through.

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Replies to "I usually use a fan on my uncovered feet to reduce the heat, warmth, and swelling..."

I use fans and have been for years. I sleep on top of the bed and don’t cover my legs or feet from the thigh down I use Cerave cream that is cool on the soles of my feet.
I had a wonderful doctor but he lived and had two hospital appointments in my state and his home state. When COVID started they wouldn’t let him travel back and forth so I lost him.

Here’s something we tried that really helped me very much with the soles of my feet.
It’s a cream called Biafine. In the US it’s sold by prescription as a “ medical device “ because it’s used by people who have had radiation treatments and have damaged their skin.
But there’s a company in France that takes US credit cards and they change only 30.00 for a tube that costs 82.00 here. You don’t have to use much and I honestly swear that this cream helped restore the feeling in the soles of my feet and stopped the burning
Company is called Avibon but you can Google buy Biafine in France.

I took LDN and it did not do much for me but with neuropathy it is different for everyone so please give it a try. My specialist touts it I had no negative side effects but it did not help because I have erythema and the front of my lower legs are bright red down the front and inner side of each calf starting with the iinside of my calf’s. The back side of each leg is “ perfect “ good luck to you